Category Living with MS

Managing MS

MS can be well managed by starting the following immediately after diagnosis.

  • Eating healthy low fat diet that is rich in vital fatty acids
  • Supplementing your diet with fundamental fatty acids
  • Testing yourself for food and other allergies
  • Doing regular exercise, physiotherapy or yoga
  • Maintaining a positive attitude to life
  • Keeping your brain active and stimulated
  • Getting enough rest
  • Avoiding fatigue
  • Leading a stress free life or as nearly stress-free as possible
  • Having satisfying relationships with significant others
  • Resisting aggressive drugs that weaken the immune system
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Support Groups

Our support groups strive to meet the following objectives:

  • To assist PwMS to live and cope positively and well with MS and to have an improved quality of life, by promoting physical, psychological, spiritual, emotional, social and economic well-being
  • To allow group members to share their MS experiences
  • To allow members to learn from each other on how to manage MS
  • To give professional advice to group members on how to cope with the negative impacts of MS
  • To provide the psychosocial support to group members

The support groups are facilitated by social workers from the Multiple Sclerosis South Africa Inland Branch.

At the moment we have two support groups running, one at Anne Harding Cheshire Home (Northworld) and the other one in Park View (Perfect Cup Cafe).
The Anne Harding support grou...

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Neurologist in your area

GAUTENG

Baker, Dr MK  Military Hospital  PRETORIA  012 314 0487
Bham, Dr A  GREENSIDE  011 646 6658
Connor, Dr MD University of Witwatersrand JOHANNESBURG 011 488 4430  / 2 / 3
Duim, Dr Wiebren Neuro Spinal Building – Little Company of Mary Hospital 50 George Storrar ave, Groenkloof Pretoria 012 460 2900
Flemming Dr J Milpark Hospital PARKTOWN 011 726 7370
Giampaulo, Dr DL Rosebank Medical & Dental Centre ROSEBANK 011 442 5848
Guldenpfennig, Dr WM Little Company of Mary Medical Centre PRETORIA 012 346 1498  / 9
Isaacs, Dr MD MORNINGSIDE 011 884-0190
Kakaza, Dr M Pretoria Academic Hospital PRETORIA 012 354-2390
Kok, Dr HDL HYDEPARK 011 788-2337
Kretzmer, Dr SH Sunninghill Hospital JOHANNESBURG 011 806-1714/2
Kritzinger, Dr PH Pretoria East Hospital PRETORIA 012 998-8885
Lippert, Dr...

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General Tips

  • If you battle to grip your pen/pencil, either wind a few elastic bands around the pen stopping just beneath the position where your fingers will rest, or buy pencil grips at Dischem.
  • Use Post Its royally! Stick them up to remember birthdays, appointments, or general reminders such as “dustbins Mondays”.
  • Have stickers made with your name, address and telephone number on to be used when you have to fill in forms or supply your information.
  • To remind yourself to take your medication first thing in the morning, put the pill bottle into your slipper. Before you can put on your slipper you need to remove the bottle!
  • A small spiral notebook with pen/pencil stuck into the spiral binding will help for short reminder and other notes.
  • When you are out and remember you have to do something when y...
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Clothes Tips

  • Select and lay out your clothes at the end of each day. If you should need help with buttons or zippers you will get your family’s support before they all leave for work.
  • Use Velcro to replace buttons or other fasteners – close the existing button holes and work the button on top of this space. Then sew the fuzzy soft side of the Velcro on the underside of the “closed up” buttonhole, sew the other side of the Velcro where the button used to be and Voila!
  • Tube socks are easier to put on than socks shaped like a foot!
  • Have loops sewed on in the inside of each shock – use the loops to pull up your socks.
  • Rub the soles of new shoes with sandpaper or scrape the soles on uneven surfaces to prevent slipping.
  • Clip-on earrings or pierced earrings on a hook that do not need a back works b...
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Bathroom Tips

  • Put a bar of soap in the foot part of pantyhose, knot the pantyhose around the tap, your soap will now be easy to reach without slipping out of your hands and the hose can double as cloth.
  • Bathtub and shower handles will help you to balance and hold onto when you enter slippery areas. These “Safe-er-Grip” handles have easy flip-up release tabs for stress free installation and removal. Suction cup design is easy to attach, remove or relocate. Obtainable at Mica Stores.
  • If you are keen on a shower, consider the use of a shower caddy, a basket that can either hang from the shower head or can be attached to the wall. The container will hold your soap, shampoo and other goods and prevent you from having to bend down.
  • Use decorative non slip tape or decals on the shower floor to prevent sli...
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Kitchen Tips

  • Use rubberised cloth as a place mat to put underneath your crockery to prevent it sliding around. These cloths come in handy when using a mixing bowl, it won’t spin round.
  • Place frequently used appliances i.e. toasters, egg boilers, sandwich toasters, etc. on counter tops instead of storing them in cabinets.
  • Consider replacing your manual appliances with electrical appliances i.e. tin openers, meat cutting knives, blenders, etc.
  • A cutting board with prongs or spikes will provide grip when you place food items on it to cut.
  • Line baking pans with foil to minimise clean up.
  • Use serrated steak knives for cutting foods during mealtime, keep them sharpened – it is safer to use than blunt knives.
  • Place two tight rubber bands a centimetre or so apart around a drinking glass, it will make it e...
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What Not To Say

Things you might want to avoid saying to someone with MS

Most people who say these things don’t mean to cause hurt feelings. With that in mind the author offers a guide for friends and family members.

But you look so good …

I was diagnosed with MS two years ago. Of course I don’t think that makes me an expert, but when a family member mentioned an old wives’ tale about the disease and tried to convince me that it was true, I thought someone really should create a guide.                                                  

To be honest, I’m not sure what feelings this is supposed to evoke, but the speaker, perhaps unknowingly, has just insinuated:

  • People who look good aren’t supposed to have an illness
  • Suffering is always visible

Just because someone looks as though they’re doing...

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