General Tips

  • If you battle to grip your pen/pencil, either wind a few elastic bands around the pen stopping just beneath the position where your fingers will rest, or buy pencil grips at Dischem.
  • Use Post Its royally! Stick them up to remember birthdays, appointments, or general reminders such as “dustbins Mondays”.
  • Have stickers made with your name, address and telephone number on to be used when you have to fill in forms or supply your information.
  • To remind yourself to take your medication first thing in the morning, put the pill bottle into your slipper. Before you can put on your slipper you need to remove the bottle!
  • A small spiral notebook with pen/pencil stuck into the spiral binding will help for short reminder and other notes.
  • When you are out and remember you have to do something when you get home, call yourself on the home phone and leave a reminder.
  • Have to take a number down and writing is a problem? Leave a calculator next to the phone and punch the number in so that you can write it down after the call. Clear the calculator after you wrote the number down.

AND FINALLY
I’M OKAY – YOU’RE OK!

Manage yourself and your MS well, and you will be in control of the situation.

If YOU are in control, it will put your family and/or caregivers at rest as well.

  • Keep the balance in your life right. Prioritise, eliminate, consolidate and streamline activities in all the aspects of your life.
  • You have to look after YOURSELF. Be sensible about time management; prioritise those things that are important to you and your family. Eliminate unnecessary and difficult tasks, rather delegate them. Give yourself permission to rest, do not feel guilty about putting your feet up, you will be rewarded the following day with adequate energy levels.
  • Stay healthy with a sensible diet. Eat regularly, eat right, snack with healthy foods, and do not skip meals.
  • Arrange your home to suit your own physical needs. Furniture placed in strategic locations can be helpful to lean on as you move from room to room.
  • Outsource when you need help. It is not a sign of weakness, rather excellent time and energy management.
  • Use technology! Get remote controls to open and close doors, switch lights off and on, cordless phones, speaker phones, answering machines…!! Too many to mention! Your PC is a good tool to organise your finances, keeping your records, keeping in contact with family and friends, etc. etc. If you are going to be more housebound, at least make it comfortable for yourself.
  • When shopping, use the trolley to lean on for stability and also as energy saver.
  • Have an open mind. Assistive tools/devices/gadgets can be expensive, but with a little bit of imagination and resourcefulness you can make your own “gadgets” to suit your pocket.